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Epilepsy Arizona

06 Nov

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Lemonade for Livy

November 6, 2018 | By |

Lemonade for Livy raises epilepsy awareness and supports the Epilepsy Foundation’s work to stop seizures, find cures, and save lives through lemonade stands and parties. These events bring people together from around the world together to give hope to those with epilepsy and their families.

We all have our unique stories and experiences with epilepsy. Collectively, we make up the epilepsy community and family. As a family, we need to work as one to raise awareness, provide support, and fund research that will lead to a cure. 65 million people around the world live with epilepsy. That doesn’t include the tens of millions of family members and friends who are also impacted by the disorder. Think of the power we have when we all work toward a common mission.

Honored Hero

Olivia Scheinman (Livy) is the inspiration and symbol behind Lemonade for Livy, a movement created by her family’s organization, Livy’s Hope. Since birth, Livy has been plagued by the damaging effects of epilepsy. She has endured multiple major brain surgeries but the seizures persist.

What started as one neighborhood lemonade stand to raise money in honor of Livy is expanding into a global campaign. It continues to grow because of Livy’s twin sister Hailey and the special bond the girls share, a mother’s love, and a father’s promise made long ago. For more information about Lemonade for Livy, please visit www.LivysHope.com.

Your Honored Hero

Join Livy as a hero and hold a Lemonade for Livy event for someone you know with epilepsy too!

Create Your Own Event

  • Hold a Lemon or Lemonade-themed Happy Hour at your home, apartment, or place of residence or set one up with a friend!
  • Host a dinner party or get together with friends and/or family
  • Any type of Lemon-themed party for birthdays, special occasions, etc.
  • Host a lemon-themed bake sale
  • Hold an event or lemonade stand on your college campus with friends or as part of a sorority/fraternity event
  • Create your own lemon-themed craft party event

The possibilities are ENDLESS and getting started is EASY!

GET STARTED

 

 

28 Mar

By

Give In Honor or Memory of a Loved One

March 28, 2019 | By |

Do you know someone affected by epilepsy? Make a gift online or by mail in honor of someone you know or in memory of a loved one who was lost too soon to epilepsy.

HELP END EPILEPSY

18 Dec

By

2018 Charity Classic Golf Tournament

December 18, 2018 | By |

 

18 Dec

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2018 Waves of Change for Epilepsy Gala

December 18, 2018 | By |

10 Apr

By

Advocacy

April 10, 2018 | By |

Stay up-to-date on the latest epilepsy-related news and learn how YOU can get involved and become and advocate for epilepsy in Arizona! LEARN MORE

 

29 Mar

By

2018 5k for Epilepsy

March 29, 2018 | By |

25 Sep

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2017 Waves of Change for Epilepsy Gala

September 25, 2017 | By |

Photo CreditJam Sani Photography

 

04 Oct

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Epilepsy Research

October 4, 2017 | By |

Since the 1990’s, more than a dozen new drugs, devices, and dietary therapies have become available to people living with epilepsy. Despite the benefits and reduced side effects these treatments have offered, the number of people living with epilepsy who cannot effectively control their seizures has remained at 30%, the same as it was more than two decades ago.

It is time to shake up the system with a new approach. Let’s change the system – together.

The Epilepsy Foundation Research Program supports the entire spectrum of discovery from idea to market and is focused solely on the needs of people with epilepsy. We help foster the development of the next generation of scientists and support research that leads to better treatments and care. We strive for excellence, innovation, and radical thinking to end epilepsy. Join our fight: www.epilepsy.com/research.

21 Mar

By

Epilepsy Awareness Night with The Dbacks!

March 21, 2019 | By |

Join us on Saturday, May 18th for our 2nd Annual #EpilepsyAwareness Night game with the Diamondbacks at Chase Field!

GET YOUR TICKETS

Order your official State Forty Eight #HopeForEpilepsy Shirt to wear on game night, while supplies last
CLICK HERE TO ORDER.

 

24 Apr

By

Camp Candlelight

April 24, 2014 | By |

 

Camp Candlelight 2019 will take place May 26th – June 1st at Camp Sky-Y in Prescott, AZ

2019 CAMPER, CIT, COUNSELOR, & MED STAFF APPS NOW AVAILABLE!

(NOTE: ALL applications MUST be completed online compatible with all online browsers EXCEPT Internet Explorer

APPLY HERE

PLEASE READ CAREFULLY: PLEASE SELECT “NO” FOR THE PROTECTION PLAN ON ALL APPLICATION TYPES – THIS IS NOT APPLICABLE TO CAMP CANDLELIGHT AND YOU WILL NOT BE REIMBURSED FOR ANY TRAVEL FEES.

APPLICATION DEADLINES:

  • 4/19: ALL FINANCIAL AID APPLICATIONS ARE DUE BY FRIDAY, APRIL 19, 2019.
  • 5/12: ALL EARLY CAMPER APPLICATIONS DUE SATURDAY, MAY 12, 2019 AT THE $550 RATE. APPLICATIONS SUBMITTED BEYOND THIS POINT INCUR A NON-REFUNDABLE $50 LATE FEE, TOTALING $600.
  • 5/17: ALL APPLICATIONS ARE DUE BY FRIDAY MAY 17TH AT 12 AM (MST). AUTOMATIC ACCOUNT LOCKOUT WILL OCCUR IF APPLICATIONS ARE NOT SUBMITTED BY THIS TIME.

Need Assistance? DOWNLOAD FAQ HERE or Contact the Foundation or CampDoc directly.

E-mail: support@campdoc.com
Phone: 734-619-8300

 

IMPORTANT DOCUMENTS:

CAMPER PACKING LIST

PARENT INFO DOC

About Camp Candlelight

For an entire week, children with epilepsy (ages 8-17), enjoy all the fun activities and friendships that come with a classic trip to summer camp. While partaking in camp adventures and entertainment, the children are able to leave behind various challenges epilepsy can bring to their daily lives. At Camp Candlelight, campers are surrounded by dozens of other campers who have epilepsy and share in many of the same experiences stemming from the seizure disorder. Camp is often the first time many children meet others their age with epilepsy. Imagine the unique opportunity children have by not worrying about what people think if they have a seizure or if they will be excluded from activities just because they are different. At Camp Candlelight, epilepsy is the norm.

Camp Candlelight features activities such as: rock climbing, high ropes course, s’mores around the campfire, paintball, swimming, Studio E, epilepsy informational sessions and nature hikes. More important than the activities, Camp Candlelight is an opportunity to bond with other children who experience a seizure disorder.

Camper Eligibility Requirements:

  • Have a diagnosis of epilepsy or seizure disorders
  • Be ages 8 through 17 (exceptions on case by case basis depending upon doctor’s note regarding child’s cognitive level)
  • Be able to feed, bathe, dress and toilet with minimal assistance

 

We’d like to thank and recognize our 2019 Camp Candlelight Sponsors for their generous support!