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Programs

06 Nov

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Lemonade for Livy

November 6, 2018 | By |

Lemonade for Livy raises epilepsy awareness and supports the Epilepsy Foundation’s work to stop seizures, find cures, and save lives through lemonade stands and parties. These events bring people together from around the world together to give hope to those with epilepsy and their families.

We all have our unique stories and experiences with epilepsy. Collectively, we make up the epilepsy community and family. As a family, we need to work as one to raise awareness, provide support, and fund research that will lead to a cure. 65 million people around the world live with epilepsy. That doesn’t include the tens of millions of family members and friends who are also impacted by the disorder. Think of the power we have when we all work toward a common mission.

Honored Hero

Olivia Scheinman (Livy) is the inspiration and symbol behind Lemonade for Livy, a movement created by her family’s organization, Livy’s Hope. Since birth, Livy has been plagued by the damaging effects of epilepsy. She has endured multiple major brain surgeries but the seizures persist.

What started as one neighborhood lemonade stand to raise money in honor of Livy is expanding into a global campaign. It continues to grow because of Livy’s twin sister Hailey and the special bond the girls share, a mother’s love, and a father’s promise made long ago. For more information about Lemonade for Livy, please visit www.LivysHope.com.

Your Honored Hero

Join Livy as a hero and hold a Lemonade for Livy event for someone you know with epilepsy too!

Create Your Own Event

  • Hold a Lemon or Lemonade-themed Happy Hour at your home, apartment, or place of residence or set one up with a friend!
  • Host a dinner party or get together with friends and/or family
  • Any type of Lemon-themed party for birthdays, special occasions, etc.
  • Host a lemon-themed bake sale
  • Hold an event or lemonade stand on your college campus with friends or as part of a sorority/fraternity event
  • Create your own lemon-themed craft party event

The possibilities are ENDLESS and getting started is EASY!

GET STARTED

 

 

10 Apr

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Advocacy

April 10, 2018 | By |

Stay up-to-date on the latest epilepsy-related news and learn how YOU can get involved and become and advocate for epilepsy in Arizona! LEARN MORE

 

04 Oct

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Epilepsy Research

October 4, 2017 | By |

Since the 1990’s, more than a dozen new drugs, devices, and dietary therapies have become available to people living with epilepsy. Despite the benefits and reduced side effects these treatments have offered, the number of people living with epilepsy who cannot effectively control their seizures has remained at 30%, the same as it was more than two decades ago.

It is time to shake up the system with a new approach. Let’s change the system – together.

The Epilepsy Foundation Research Program supports the entire spectrum of discovery from idea to market and is focused solely on the needs of people with epilepsy. We help foster the development of the next generation of scientists and support research that leads to better treatments and care. We strive for excellence, innovation, and radical thinking to end epilepsy. Join our fight: www.epilepsy.com/research.

24 Apr

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Camp Candlelight

April 24, 2014 | By |

 

Camp Candlelight 2019 will take place May 26th – June 1st at Camp Sky-Y in Prescott, AZ

2019 CAMPER, CIT, COUNSELOR, & MED STAFF APPS NOW AVAILABLE!

(NOTE: ALL applications MUST be completed online compatible with all online browsers EXCEPT Internet Explorer

APPLY HERE

PLEASE READ CAREFULLY: PLEASE SELECT “NO” FOR THE PROTECTION PLAN ON ALL APPLICATION TYPES – THIS IS NOT APPLICABLE TO CAMP CANDLELIGHT AND YOU WILL NOT BE REIMBURSED FOR ANY TRAVEL FEES.

APPLICATION DEADLINES:

  • 4/19: ALL FINANCIAL AID APPLICATIONS ARE DUE BY FRIDAY, APRIL 19, 2019.
  • 5/12: ALL EARLY CAMPER APPLICATIONS DUE SATURDAY, MAY 12, 2019 AT THE $550 RATE. APPLICATIONS SUBMITTED BEYOND THIS POINT INCUR A NON-REFUNDABLE $50 LATE FEE, TOTALING $600.
  • 5/17: ALL APPLICATIONS ARE DUE BY FRIDAY MAY 17TH AT 12 AM (MST). AUTOMATIC ACCOUNT LOCKOUT WILL OCCUR IF APPLICATIONS ARE NOT SUBMITTED BY THIS TIME.

Need Assistance? DOWNLOAD FAQ HERE or Contact the Foundation or CampDoc directly.

E-mail: support@campdoc.com
Phone: 734-619-8300

 

IMPORTANT DOCUMENTS:

CAMPER PACKING LIST

PARENT INFO DOC

About Camp Candlelight

For an entire week, children with epilepsy (ages 8-17), enjoy all the fun activities and friendships that come with a classic trip to summer camp. While partaking in camp adventures and entertainment, the children are able to leave behind various challenges epilepsy can bring to their daily lives. At Camp Candlelight, campers are surrounded by dozens of other campers who have epilepsy and share in many of the same experiences stemming from the seizure disorder. Camp is often the first time many children meet others their age with epilepsy. Imagine the unique opportunity children have by not worrying about what people think if they have a seizure or if they will be excluded from activities just because they are different. At Camp Candlelight, epilepsy is the norm.

Camp Candlelight features activities such as: rock climbing, high ropes course, s’mores around the campfire, paintball, swimming, Studio E, epilepsy informational sessions and nature hikes. More important than the activities, Camp Candlelight is an opportunity to bond with other children who experience a seizure disorder.

Camper Eligibility Requirements:

  • Have a diagnosis of epilepsy or seizure disorders
  • Be ages 8 through 17 (exceptions on case by case basis depending upon doctor’s note regarding child’s cognitive level)
  • Be able to feed, bathe, dress and toilet with minimal assistance

 

We’d like to thank and recognize our 2019 Camp Candlelight Sponsors for their generous support!

 

25 Apr

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Educational Conferences

April 25, 2014 | By |

Check out some of the 2019 Pediatric Presentations Below!

Presented in partnership with Barrow Neurological Institute at Phoenix Children’s Hospital.

Surgical Innovations for Treating Epilepsy Medical Management of Seizures and Epilepsy Diagnosing Epilepsy in Children and Adolescents

 

Thank you for attending the 2018 Annual Epilepsy Pediatric Patient Care Conference on Saturday, April 28, 2018.

Presented in partnership with Barrow Neurological Institute at Phoenix Children’s Hospital.

Epilepsy Surgery PPT Independence and Empowerment PPT Ketogenic PPT Epilepsy Medication PPT

Thank you to all who attended our Annual 2017 Adult Epilepsy Conference!

WATCH RECORDING

Thank you to all who attended our 2017 Tucson Epilepsy Education Seminar!

Thank you to all who attended our Annual 2017 Epilepsy Pediatric Patient Care Conference!

2016 Adult Epilepsy Conference

thank-you

Click to View 2015 Video!

A Special Thank You to Our 2016 Adult Epilepsy Conference Sponsors! FULL VIDEO for 2016 coming soon!

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Interested in sponsoring an upcoming conference? contact the Foundation at AZ@EFA.org or call (602) 282-3515

 

20 Apr

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EFAZ Share Your Story Project

April 20, 2017 | By |

If you have epilepsy, are the parent/guardian, sibling, or friend of someone w/epilepsy and want to share your story to help inspire others, please carefully read and complete the following form. Thank you!

  • NOTE: ALL participants MUST read/complete the following release form in order to have their responses considered by the Epilepsy Foundation of Arizona. Thank you!
  • Please provide a response to the following questions below:

 

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20 Apr

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Epilepsy Support Groups

April 20, 2017 | By |

We offer a number of monthly epilepsy support & empowerment groups across the state, that provide individuals with epilepsy and their families, the opportunity to meet, share resources, speak with medical professionals and unite.

View our Calendar for more details!

Learn More

21 Sep

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2016 Adult Epilepsy Conference

September 21, 2016 | By |

Join Us for the 2016 Adult Epilepsy Conference!

It’s informative & FREE register online today! REGISTER

A Special Thank You to Our 2016 Adult Epilepsy Conference Sponsors! 

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27 Jul

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Calling All Volunteers!

July 27, 2015 | By |

Do you have epilepsy? Do you have a close friend or family member who has epilepsy? Do you want to make a difference and dedicate some of your free time to helping people in the epilepsy community? Then you should come volunteer for us!  We have a myriad of volunteer opportunities available to those willing and able to aid us on our mission to prevent, control and cure epilepsy through services, education, advocacy and research.

Complete the volunteer account information online

START HERE

29 Jul

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Register for Continuing Education for School Nurses

July 29, 2014 | By |

This 3 ½ hour train-the-trainer program features a neuro-nurse explaining aspects of epilepsy, seizure types, diagnosis, treatment, and first aid for the student having a seizure. If you are interested in attending, please contact us via the form below.

 

Please complete the following information and click submit

 

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